Advocacy and Genetics: Arenas of Engagement, 2006

This conference was an opportunity for the public to meet with experts to learn about and discuss some of the most pressing issues that are emerging as genetics becomes more relevant in all of our lives. Genetic breakthroughs have had far-reaching implications for issues as diverse as: how we define race; genetic discrimination and privacy; genetic identity; and the role of the pharmaceutical industry in advocacy and entrepreneurship. The conference was organized as a series of plenary sessions, each of which was followed by open dialogue between presenters and conference participants. Through thoughtful and informed discussion, we touched on how advocacy and genetics intersect today and anticipated how these “arenas of engagement” may evolve in the future.

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Health Advocates in Research, 2005

This conference was dedicated to initiating dialogue and fostering alliances, with participants considering these important questions: 

• How do we—and how should we—participate, as advocates, in research?
• What ethical principles should guide our participation in research?

Learn more about the Health Advocates in Research conference»