Conference Recap

The 2006 Health Advocacy Program Conference, Advocacy and Genetics: Arenas of Engagement, touched on the ways advocacy and genetics intersect today and anticipated how these “arenas of engagement” may evolve in the future. Below is a look back at some of the highlights.

Welcome and Conference Overview: Marsha Hurst

Keynote Address: Troy Duster

"Race and the New Genetics: Biotechnology, Biomarkers and Biomarketing"

Response to and Discussion with Troy Duster

• Linwood Lewis
• Leah Olson
• Karen Rader

Guest Speaker: Sharon Terry

"On Organizing Genetic Advocacy"

Plenary Panel and Discussion: Arenas of Engagement

• Karen Rader, moderator
• Rachel Grob on newborn screening
• Timothy Leshan on genetic privacy and non-discrimination
• David Moore on gene-environment interactions

Guest Speaker: Kristen Karlberg

"Genetic Information and Reframing of Personal Identity: A Personal Story"

Closing Address: Caroline Lieber